{"id":106,"date":"2021-11-14T14:06:24","date_gmt":"2021-11-14T11:06:24","guid":{"rendered":"http:\/\/auraparis2021.pastelle.fr\/?page_id=106"},"modified":"2022-11-29T14:45:20","modified_gmt":"2022-11-29T11:45:20","slug":"liens-utiles","status":"publish","type":"page","link":"https:\/\/auraparis.org\/fr\/liens-utiles\/","title":{"rendered":"Liens utiles"},"content":{"rendered":"

[vc_row el_class=\u00a0\u00bbaura-small-container\u00a0\u00bb][vc_column][vc_row_inner equal_height=\u00a0\u00bbyes\u00a0\u00bb gap=\u00a0\u00bb35″][vc_column_inner el_class=\u00a0\u00bbmission-content\u00a0\u00bb][vc_custom_heading text=\u00a0\u00bbAssociations de patients et r\u00e9seaux\u00a0\u00bb font_container=\u00a0\u00bbtag:h1|text_align:left\u00a0\u00bb use_theme_fonts=\u00a0\u00bbyes\u00a0\u00bb][\/vc_column_inner][\/vc_row_inner][vc_row_inner equal_height=\u00a0\u00bbyes\u00a0\u00bb gap=\u00a0\u00bb35″][vc_column_inner el_class=\u00a0\u00bbmission-content\u00a0\u00bb][vc_custom_heading text=\u00a0\u00bbAIRG-France\u00a0\u00bb font_container=\u00a0\u00bbtag:h3|text_align:left\u00a0\u00bb use_theme_fonts=\u00a0\u00bbyes\u00a0\u00bb][vc_column_text css=\u00a0\u00bb.vc_custom_1663663790181{margin-top: 0px !important;padding-top: 0px !important;}\u00a0\u00bb]L\u2019association pour l\u2019Information et la Recherche sur les Maladies R\u00e9nales G\u00e9n\u00e9tiques.<\/p>\n

Elle a pour objectifs\u00a0:<\/p>\n

– Informer sur tous les aspects aff\u00e9rents aux maladies r\u00e9nales g\u00e9n\u00e9tiques,
\n– Aider les patients et leurs familles en leur offrant un lieu d\u2019\u00e9coute,
\n– Soutenir le d\u00e9veloppement de toute forme de recherche sur les maladies r\u00e9nales g\u00e9n\u00e9tiques.
\nEn adh\u00e9rant, vous recevrez la revue N\u00e9phrog\u00e8ne, les infos-lettres, aurez acc\u00e8s gratuitement aux livrets sur certaines
\npathologies.<\/p>\n

[\/vc_column_text][\/vc_column_inner][\/vc_row_inner][vc_row_inner equal_height=\u00a0\u00bbyes\u00a0\u00bb gap=\u00a0\u00bb35″][vc_column_inner el_class=\u00a0\u00bbmission-content\u00a0\u00bb width=\u00a0\u00bb1\/2″][vc_column_text css=\u00a0\u00bb.vc_custom_1663663802040{margin-top: 0px !important;padding-top: 0px !important;}\u00a0\u00bb el_class=\u00a0\u00bbmore-link-block\u00a0\u00bb]<\/p>\n\n\n\n
\"\"https:\/\/www.airg-france.fr<\/a><\/td>\n<\/tr>\n<\/tbody>\n<\/table>\n

[\/vc_column_text][\/vc_column_inner][vc_column_inner width=\u00a0\u00bb1\/2″][\/vc_column_inner][\/vc_row_inner][vc_row_inner equal_height=\u00a0\u00bbyes\u00a0\u00bb gap=\u00a0\u00bb35″][vc_column_inner el_class=\u00a0\u00bbmission-content\u00a0\u00bb][vc_custom_heading text=\u00a0\u00bbFRANCE REIN\u00a0\u00bb font_container=\u00a0\u00bbtag:h3|text_align:left\u00a0\u00bb use_theme_fonts=\u00a0\u00bbyes\u00a0\u00bb][vc_column_text css=\u00a0\u00bb.vc_custom_1652352421495{margin-top: 0px !important;padding-top: 0px !important;}\u00a0\u00bb]Association de patients ind\u00e9pendante et experte, France Rein agit au service des millions de Fran\u00e7ais concern\u00e9s par
\nune maladie r\u00e9nale chronique et s\u2019engage contre ces maladies partout et \u00e0 tous les stades.<\/p>\n

 <\/p>\n

Elle a pour objectifs de :<\/strong>
\n\u2212 PR\u00c9VENIR\u00a0: l\u2019\u00e9volution de la maladie r\u00e9nale, en informant, en d\u00e9pistant et en encourageant la recherche
\nm\u00e9dicale afin de r\u00e9duire le nombre de personnes entrant chaque ann\u00e9e en traitement de suppl\u00e9ance.
\n\u2212 INFLUENCER\u00a0: les pouvoirs publics dans la d\u00e9finition des politiques de sant\u00e9. Faire reconna\u00eetre la maladie
\nr\u00e9nale comme un enjeu de sant\u00e9 publique majeur.
\n\u2212 AM\u00c9LIORER\u00a0: la qualit\u00e9 de vie et de traitement des patients en les aidant \u00e0 construire leur projet de vie avec
\nla maladie, soutenir leurs proches.<\/p>\n

 <\/p>\n

Contact :<\/strong>
\nFrance Rein
\nSi\u00e8ge\u00a0: 10 rue Mercoeur – 75011 PARIS
\nT\u00e9l\u00a0: 01 40 19 92 85[\/vc_column_text][\/vc_column_inner][\/vc_row_inner][vc_row_inner equal_height=\u00a0\u00bbyes\u00a0\u00bb gap=\u00a0\u00bb35″][vc_column_inner el_class=\u00a0\u00bbmission-content\u00a0\u00bb width=\u00a0\u00bb1\/2″][vc_column_text css=\u00a0\u00bb.vc_custom_1667923639796{margin-top: 0px !important;padding-top: 0px !important;}\u00a0\u00bb el_class=\u00a0\u00bbmore-link-block\u00a0\u00bb]<\/p>\n\n\n\n
\"\"https:\/\/www.francerein.org<\/a><\/td>\n<\/tr>\n<\/tbody>\n<\/table>\n

[\/vc_column_text][\/vc_column_inner][vc_column_inner width=\u00a0\u00bb1\/2″][\/vc_column_inner][\/vc_row_inner][vc_row_inner equal_height=\u00a0\u00bbyes\u00a0\u00bb gap=\u00a0\u00bb35″][vc_column_inner el_class=\u00a0\u00bbmission-content\u00a0\u00bb][vc_custom_heading text=\u00a0\u00bbREIN ECHOS\u00a0\u00bb font_container=\u00a0\u00bbtag:h3|text_align:left\u00a0\u00bb use_theme_fonts=\u00a0\u00bbyes\u00a0\u00bb][vc_column_text css=\u00a0\u00bb.vc_custom_1663663682352{margin-top: 0px !important;padding-top: 0px !important;}\u00a0\u00bb]Une association d\u00e9di\u00e9e aux maladies r\u00e9nales. Cr\u00e9\u00e9e par des patients, elle a pour vocation l\u2019information large sur
\nl\u2019insuffisance r\u00e9nale et ses traitements.[\/vc_column_text][\/vc_column_inner][\/vc_row_inner][vc_row_inner equal_height=\u00a0\u00bbyes\u00a0\u00bb gap=\u00a0\u00bb35″][vc_column_inner el_class=\u00a0\u00bbmission-content\u00a0\u00bb width=\u00a0\u00bb1\/2″][vc_column_text css=\u00a0\u00bb.vc_custom_1663663724949{margin-top: 0px !important;padding-top: 0px !important;}\u00a0\u00bb el_class=\u00a0\u00bbmore-link-block\u00a0\u00bb]<\/p>\n\n\n\n
\"\"https:\/\/www.rein-echos.info\u00a0<\/a><\/td>\n<\/tr>\n<\/tbody>\n<\/table>\n

[\/vc_column_text][\/vc_column_inner][vc_column_inner width=\u00a0\u00bb1\/2″][\/vc_column_inner][\/vc_row_inner][vc_row_inner equal_height=\u00a0\u00bbyes\u00a0\u00bb gap=\u00a0\u00bb35″][vc_column_inner el_class=\u00a0\u00bbmission-content\u00a0\u00bb][vc_custom_heading text=\u00a0\u00bbRENALOO\u00a0\u00bb font_container=\u00a0\u00bbtag:h3|text_align:left\u00a0\u00bb use_theme_fonts=\u00a0\u00bbyes\u00a0\u00bb][vc_column_text css=\u00a0\u00bb.vc_custom_1663663754049{margin-top: 0px !important;padding-top: 0px !important;}\u00a0\u00bb]L\u2019association Renaloo a pour but d\u2019apporter soutien, information et entraide aux personnes touch\u00e9es par
\nl\u2019insuffisance r\u00e9nale chronique, dialys\u00e9es ou greff\u00e9es, ainsi qu\u2019\u00e0 leurs proches.[\/vc_column_text][\/vc_column_inner][\/vc_row_inner][vc_row_inner equal_height=\u00a0\u00bbyes\u00a0\u00bb gap=\u00a0\u00bb35″][vc_column_inner el_class=\u00a0\u00bbmission-content\u00a0\u00bb width=\u00a0\u00bb1\/2″][vc_column_text css=\u00a0\u00bb.vc_custom_1663663769110{margin-top: 0px !important;padding-top: 0px !important;}\u00a0\u00bb el_class=\u00a0\u00bbmore-link-block\u00a0\u00bb]<\/p>\n\n\n\n
\"\"https:\/\/www.renaloo.com<\/a><\/td>\n<\/tr>\n<\/tbody>\n<\/table>\n

[\/vc_column_text][\/vc_column_inner][vc_column_inner width=\u00a0\u00bb1\/2″][\/vc_column_inner][\/vc_row_inner][vc_row_inner equal_height=\u00a0\u00bbyes\u00a0\u00bb gap=\u00a0\u00bb35″][vc_column_inner el_class=\u00a0\u00bbmission-content\u00a0\u00bb][vc_custom_heading text=\u00a0\u00bbRENIF\u00a0\u00bb font_container=\u00a0\u00bbtag:h3|text_align:left\u00a0\u00bb use_theme_fonts=\u00a0\u00bbyes\u00a0\u00bb][vc_column_text css=\u00a0\u00bb.vc_custom_1663663826436{margin-top: 0px !important;padding-top: 0px !important;}\u00a0\u00bb]RENIF est le r\u00e9seau de n\u00e9phrologie d\u2019Ile-de-France constitu\u00e9 sous forme d\u2019association (loi 1901) et il est financ\u00e9 par
\nl\u2019Agence R\u00e9gionale de Sant\u00e9.<\/p>\n

 <\/p>\n

Missions principales\u00a0:<\/strong>
\n\u2212 D\u00e9velopper le d\u00e9pistage afin de renforcer le diagnostic pr\u00e9coce de l\u2019insuffisance r\u00e9nale chronique,
\n\u2212 G\u00e9n\u00e9raliser une strat\u00e9gie de prise en charge afin de ralentir l\u2019\u00e9volution de la maladie, de d\u00e9pister et pr\u00e9venir
\nses complications, ainsi que de prendre en charge les facteurs de risques cardio-vasculaires (services au
\npatient),
\n\u2212 Proposer des actions permettant d\u2019am\u00e9liorer les pratiques des professionnels de sant\u00e9.<\/p>\n

 <\/p>\n

Les professionnels\u00a0:<\/strong><\/p>\n

Il regroupe des professionnels de sant\u00e9 lib\u00e9raux et hospitaliers d\u2019Ile-de-France form\u00e9s au suivi de la maladie r\u00e9nale
\nchronique.
\nLe r\u00e9seau assure \u00e9galement des formations en n\u00e9phrologie pour les m\u00e9decins et les param\u00e9dicaux et met \u00e0 leur
\ndisposition des outils et documents.<\/p>\n

 <\/p>\n

Les services au patient\u00a0:<\/strong><\/p>\n

En devenant adh\u00e9rent du r\u00e9seau, le patient b\u00e9n\u00e9ficie d\u2019une prise en charge coordonn\u00e9e entre les professionnels de
\nsant\u00e9 qui le suivent.<\/p>\n

Il peut b\u00e9n\u00e9ficier de :
\n\u2212 pr\u00eat de tensiom\u00e8tre
\n\u2212 consultations di\u00e9t\u00e9tiques
\n\u2212 ateliers di\u00e9t\u00e9tiques (\u00e9ducation th\u00e9rapeutique)
\n\u2212 ateliers sur les traitements
\n\u2212 groupes de parole
\n\u2212 consultations de n\u00e9phrologie dans les centres de sant\u00e9
\n\u2212 bilan infirmier
\n\u2212 documents d\u2019information<\/p>\n

 <\/p>\n

Contact :<\/strong>
\nRENIF
\n3-5, rue de Metz – 75010 PARIS
\nT\u00e9l : 01 48 01 93 00
\ncontact@renif.fr<\/a>[\/vc_column_text][\/vc_column_inner][\/vc_row_inner][vc_row_inner equal_height=\u00a0\u00bbyes\u00a0\u00bb gap=\u00a0\u00bb35″][vc_column_inner el_class=\u00a0\u00bbmission-content\u00a0\u00bb width=\u00a0\u00bb1\/2″][vc_column_text css=\u00a0\u00bb.vc_custom_1663663837868{margin-top: 0px !important;padding-top: 0px !important;}\u00a0\u00bb el_class=\u00a0\u00bbmore-link-block\u00a0\u00bb]<\/p>\n\n\n\n
\"\"https:\/\/www.renif.fr<\/a><\/td>\n<\/tr>\n<\/tbody>\n<\/table>\n

[\/vc_column_text][\/vc_column_inner][vc_column_inner width=\u00a0\u00bb1\/2″][\/vc_column_inner][\/vc_row_inner][vc_row_inner equal_height=\u00a0\u00bbyes\u00a0\u00bb gap=\u00a0\u00bb35″][vc_column_inner el_class=\u00a0\u00bbmission-content\u00a0\u00bb][vc_custom_heading text=\u00a0\u00bbSoci\u00e9t\u00e9 Francophone de N\u00e9phrologie, Dialyse et Transplantation\u00a0\u00bb font_container=\u00a0\u00bbtag:h3|text_align:left\u00a0\u00bb use_theme_fonts=\u00a0\u00bbyes\u00a0\u00bb][vc_column_text css=\u00a0\u00bb.vc_custom_1663663442762{margin-top: 0px !important;padding-top: 0px !important;}\u00a0\u00bb]La mission de la SFNDT est de soutenir le d\u00e9veloppement de la n\u00e9phrologie dans tous ses domaines, de la
\nn\u00e9phrologie clinique \u00e0 la dialyse et \u00e0 la transplantation r\u00e9nale ainsi que dans toutes les dimensions de soins, de
\nrecherche fondamentale, d\u2019avanc\u00e9es \u00e9pid\u00e9miologiques et cliniques, et d\u2019\u00e9ducation.<\/p>\n

[\/vc_column_text][\/vc_column_inner][\/vc_row_inner][vc_row_inner equal_height=\u00a0\u00bbyes\u00a0\u00bb gap=\u00a0\u00bb35″][vc_column_inner el_class=\u00a0\u00bbmission-content\u00a0\u00bb width=\u00a0\u00bb1\/2″][vc_column_text css=\u00a0\u00bb.vc_custom_1663663430684{margin-top: 0px !important;padding-top: 0px !important;}\u00a0\u00bb el_class=\u00a0\u00bbmore-link-block\u00a0\u00bb]<\/p>\n\n\n\n
\"\"\u00a0https:\/\/www.sfndt.org<\/a><\/td>\n<\/tr>\n<\/tbody>\n<\/table>\n

[\/vc_column_text][\/vc_column_inner][vc_column_inner width=\u00a0\u00bb1\/2″][\/vc_column_inner][\/vc_row_inner][vc_custom_heading text=\u00a0\u00bbQUALISCOPE\u00a0\u00bb font_container=\u00a0\u00bbtag:h1|text_align:left\u00a0\u00bb use_theme_fonts=\u00a0\u00bbyes\u00a0\u00bb][vc_row_inner equal_height=\u00a0\u00bbyes\u00a0\u00bb gap=\u00a0\u00bb35″][vc_column_inner el_class=\u00a0\u00bbmission-content\u00a0\u00bb][vc_column_text css=\u00a0\u00bb.vc_custom_1668697926275{margin-top: 0px !important;padding-top: 0px !important;}\u00a0\u00bb]QUALISCOPE est un site public d\u2019information sur la qualit\u00e9 et la s\u00e9curit\u00e9 des soins dans les h\u00f4pitaux et cliniques du
\nterritoire fran\u00e7ais. Il permet de consulter des donn\u00e9es de qualit\u00e9 de prise en charge et des informations sur l\u2019activit\u00e9
\nd\u00e9taill\u00e9es par \u00e9tablissement de sant\u00e9 (5 500 au total).
\nL\u2019objectif de ce site est d\u2019offrir au grand public une information fiable, actualis\u00e9e, accessible, p\u00e9dagogique et
\ncontextualis\u00e9e afin que l\u2019usager soit acteur de sa d\u00e9marche de soins et qu\u2019il puisse \u00e9changer avec un professionnel
\nde sant\u00e9. QUALISCOPE s\u2019adresse \u00e9galement aux relais d\u2019information aupr\u00e8s des usagers que sont les associations de
\npatients et repr\u00e9sentants d\u2019usagers, ainsi que les m\u00e9decins. Ce site peut en outre int\u00e9resser les \u00e9tablissements de
\nsant\u00e9 eux-m\u00eames dans le cadre de leurs d\u00e9marches qualit\u00e9.[\/vc_column_text][\/vc_column_inner][\/vc_row_inner][vc_row_inner equal_height=\u00a0\u00bbyes\u00a0\u00bb gap=\u00a0\u00bb35″][vc_column_inner el_class=\u00a0\u00bbmission-content\u00a0\u00bb width=\u00a0\u00bb1\/2″][vc_column_text css=\u00a0\u00bb.vc_custom_1668698035147{margin-top: 0px !important;padding-top: 0px !important;}\u00a0\u00bb el_class=\u00a0\u00bbmore-link-block\u00a0\u00bb]<\/p>\n\n\n\n
\"\"https:\/\/www.has-sante.fr\/<\/a><\/td>\n<\/tr>\n<\/tbody>\n<\/table>\n

[\/vc_column_text][\/vc_column_inner][vc_column_inner width=\u00a0\u00bb1\/2″][\/vc_column_inner][\/vc_row_inner][\/vc_column][\/vc_row]<\/p>\n","protected":false},"excerpt":{"rendered":"

[vc_row el_class=\u00a0\u00bbaura-small-container\u00a0\u00bb][vc_column][vc_row_inner equal_height=\u00a0\u00bbyes\u00a0\u00bb gap=\u00a0\u00bb35″][vc_column_inner el_class=\u00a0\u00bbmission-content\u00a0\u00bb][vc_custom_heading text=\u00a0\u00bbAssociations de patients et r\u00e9seaux\u00a0\u00bb font_container=\u00a0\u00bbtag:h1|text_align:left\u00a0\u00bb use_theme_fonts=\u00a0\u00bbyes\u00a0\u00bb][\/vc_column_inner][\/vc_row_inner][vc_row_inner equal_height=\u00a0\u00bbyes\u00a0\u00bb gap=\u00a0\u00bb35″][vc_column_inner el_class=\u00a0\u00bbmission-content\u00a0\u00bb][vc_custom_heading text=\u00a0\u00bbAIRG-France\u00a0\u00bb font_container=\u00a0\u00bbtag:h3|text_align:left\u00a0\u00bb use_theme_fonts=\u00a0\u00bbyes\u00a0\u00bb][vc_column_text css=\u00a0\u00bb.vc_custom_1663663790181{margin-top: 0px !important;padding-top: 0px !important;}\u00a0\u00bb]L\u2019association pour l\u2019Information et la Recherche sur les Maladies R\u00e9nales G\u00e9n\u00e9tiques. Elle a pour objectifs\u00a0: – Informer sur tous les aspects aff\u00e9rents aux maladies r\u00e9nales g\u00e9n\u00e9tiques, – Aider les patients et leurs familles … <\/p>\n

Continuer la lecture \u00ab\u00a0Liens utiles\u00a0\u00bb<\/span><\/a><\/p>\n","protected":false},"author":5,"featured_media":2146,"parent":0,"menu_order":85,"comment_status":"closed","ping_status":"closed","template":"templates\/template-full-width.php","meta":{"_acf_changed":false,"footnotes":""},"class_list":["post-106","page","type-page","status-publish","has-post-thumbnail","hentry","entry"],"acf":[],"yoast_head":"\nLiens utiles - L'AURA Paris<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/auraparis.org\/fr\/liens-utiles\/\" \/>\n<meta property=\"og:locale\" content=\"fr_FR\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Liens utiles - L'AURA Paris\" \/>\n<meta property=\"og:description\" content=\"[vc_row el_class=\u00a0\u00bbaura-small-container\u00a0\u00bb][vc_column][vc_row_inner equal_height=\u00a0\u00bbyes\u00a0\u00bb gap=\u00a0\u00bb35″][vc_column_inner el_class=\u00a0\u00bbmission-content\u00a0\u00bb][vc_custom_heading text=\u00a0\u00bbAssociations de patients et r\u00e9seaux\u00a0\u00bb font_container=\u00a0\u00bbtag:h1|text_align:left\u00a0\u00bb use_theme_fonts=\u00a0\u00bbyes\u00a0\u00bb][\/vc_column_inner][\/vc_row_inner][vc_row_inner equal_height=\u00a0\u00bbyes\u00a0\u00bb gap=\u00a0\u00bb35″][vc_column_inner el_class=\u00a0\u00bbmission-content\u00a0\u00bb][vc_custom_heading text=\u00a0\u00bbAIRG-France\u00a0\u00bb font_container=\u00a0\u00bbtag:h3|text_align:left\u00a0\u00bb use_theme_fonts=\u00a0\u00bbyes\u00a0\u00bb][vc_column_text css=\u00a0\u00bb.vc_custom_1663663790181{margin-top: 0px !important;padding-top: 0px !important;}\u00a0\u00bb]L\u2019association pour l\u2019Information et la Recherche sur les Maladies R\u00e9nales G\u00e9n\u00e9tiques. 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